Artigo: “Timeliness of Autism Spectrum Disorder Diagnosis”
Publicado em 7 de maio de 2015
Artigo: “Parental Concerns, Provider Response, and Timeliness of Autism Spectrum Disorder Diagnosis”
Katharine Elizabeth Zuckerman, MD, MPHcorrespondenceemail, Olivia Jasmine Lindly, MPH, Brianna Kathleen Sinche, MPH
Received: June 30, 2014; Received in revised form: January 28, 2015; Accepted: March 4, 2015; Published Online: April 14, 2015
Publication stage: In Press Corrected Proof
To assess differences between child age at first parental concern and age at first parental discussion of concerns with a health care provider among children with autism spectrum disorder (ASD) vs those with intellectual disability/developmental delay (ID/DD), and to assess whether provider response to parental concerns is associated with delays in ASD diagnosis.
Using nationally representative data from the 2011 Survey of Pathways to Diagnosis and Treatment, we compared child age at parent’s first developmental concern with age at first discussion of concerns with a provider, and categorized provider response as proactive or reassuring/passive, among 1420 children with ASD and 2098 children with ID/DD. In the children with ASD, we tested the association between provider response type and years of diagnostic delay.
Compared with children with ID/DD, children with ASD were younger when parents first had concerns and first discussed those concerns with a provider. Compared with parents of children with ID/DD, parents of children with ASD were less likely to receive proactive responses to their concerns and more likely to receive reassuring/passive responses. Among children with ASD, those with more proactive provider responses to concerns had shorter delays in ASD diagnosis compared with those with passive/reassuring provider responses.
Although parents of children with ASD have early concerns, delays in diagnosis are common, particularly when providers’ responses are reassuring or passive, highlighting the need for targeted improvements in primary care.